Monday, October 26, 2009
Saturday, October 24, 2009
We also have a better idea on when surgery will occur. It's now "before year's end." So anytime between now and the end of December we'll finally get that surgery done. Which is a good thing...it really is. But it's still hell to have to choose to take your daughter's lung out.
But for now, the focus is on the Halloween Parade tomorrow in the center of town. All the kids dress in their costumes and follow the Headless Horseman down Main Street. Elle will be Dorothy and David is Luke Skywalker. There are rumors I may be getting dressed up as well...not likely, but possible.
Friday, October 16, 2009
There has been a recent issue with Elle's two lines. The issue is that Miss Elle is sick of her two lines and decided that playing with, twisting and swinging them was the best way to express that displeasure. And so both lines developed breaks. They were small, but needed to be repaired. So they were, but they give her a large dose of antibiotics at the same time. So this happened twice, and the theory is that this may have impacted the development of whatever it is in her white cell count we need to grow. So we are giving her one more week and laying off the Bactrum this weekend. Hopefully that will do it.
Other than that, things have been pretty mellow for the girl. The "big deal" is that she has her Dorothy outfit for Halloween. And yes, as soon as we have the whole ensemble on her, there will be pictures posted.
Thursday, October 8, 2009
She handled her CT and PET scans like a champ. Older men, athletes even, freak out and have to be sedated when they enter these machines. Elle just lays there and occasionally snoozes. Ain't no one tougher than my little girl.
Sunday, October 4, 2009
The other big news is Elle has discovered and fallen in love with "The Wizard of Oz." She has had the DVD for four days and has watched it about 9,374 times so far. I think she likes it.